Interview of a EDS Parent

So we all know that our parents know best and if you don’t know that yet, you will. It’s no secret that parents are some of the most important people in a child’s life. Parents are there to kiss all the boo-boos and give hugs when you get straight A’s but have you ever thought about how it makes them feel to do all these things? Take a moment and consider how it must feel for them. Now take a moment and consider a parent of a child with EDS. Do you think it is different? I decided I wanted to know.

Continue reading

Day 2: What other Illnesses do you have that are Related to your EDS?

I told you I was going to get personal. I wouldn’t lie to you… This question is hard for me to answer. I am one of the fortunate ones. I don’t have to many other illnesses besides my obvious multiple dislocations and continuous pain. (Hang on a minute while I go knock on wood.) I am very blessed in that aspect. Other than my EDS, I have a chronic psoriasis, I’m lactose intolerant, and some allergies (thanks dad -_- ). With EDS and psoriasis my immune system is kind of, how do you say, nonexistent. So, I am constantly getting some sort of bug. Even though I’m constantly sick, I am one of the lucky ones to have few complications. As far as what my EDS effects, I have currently dislocated many body parts. I’ll list them from head to toes. Right shoulder dislocation, left shoulder subluxation, right thumb dislocation, left thumb dislocation, right hip subluxation, left hip subluxation, right knee dislocation, left knee dislocation, right big toe dislocation, left big toe dislocation. For those of us keeping count, that’s 7 dislocations, 3 subluxations and counting. Yup. That’s a lot. And yet, I’m one of the lucky ones. For you guys who are still wondering what a subluxation is, it’s when a body part moves from its designated spot but not far enough to be completely dislocated. Don’t be fooled by the way it sounds, it still hurts like a you know what. Even though the dislocations/subluxations hurt, I’m still surviving and living a pretty great life. 😁