Just a Bump in the Road

Everyone and every family deals with their own disappointments and upsets. Everyone receives bad news or gets into situations that are tough to deal with. These are unfortunate but unavoidable. These inevitable events are what my family and I have come to call bumps in the road. Each road has its own bumps and potholes but just ahead is a patch of newly placed concrete. Holding your head up high and making it through the tough situations will make you a stronger person and will make you feel more appreciative of that new asphalt. The situations may seem like the worst thing that’s ever happened and that you will never be the same but this is far from true. You are capable of handling more than you think. You are going to make it through those rough patches and you are going to be okay. Not to far from now there is going to be a patch of fresh concrete where you can put the windows down, crank the music and know that you are okay!

My Most Recent and Devastatingly Hilarious Dislocation

Story Time!

I told the story of my most embarrassing and devastating dislocation before and since I told that story, I was prepared to be embarrassed and regret it but I haven’t. I have found that if I laugh at myself first and realize just how ridiculous it is to be embarrassed about something that is out of my control. So, I have had another epic whip out since then and I figured “Hey, why not post about it to the internet!” So here we go….

Let’s set the scene… I went to lunch with my fiance and his parents at a local place that we often eat at. We love the small hometown places and this place always stays full. I had an audience to say the least. Well we had already eaten and we were getting ready to leave to free up a table for those that were standing. As we left, my fiance stopped to get a refill. This left him facing away from me. As I walked out, I slipped and by slipped I mean total wipe out. I crashed into the front door that has those bells attached so the workers know to expect another customer. EVERY eye turned my way. As I was falling I grabbed for the handle and I subluxed my shoulder because of the force I fell and all my weight being on that one arm. To say it was painful is a bit of an understatement. To this day my neck still hurts. But the worst part wasn’t the pain, it was the embarrassment. I got myself up and promptly ran (okay, swiftly walked) to the car and to make things worse the car was locked. -__- The other customers who were concerned about the girl who just took a face dive into the door were looking through the windows and staring at me. I smiled and waited for my fiance to meet me outside and let me into the car so I could die of embarrassment. I thought that this embarrassment would last a long time but it didn’t. It lasted about an hour before I was laughing and making jokes about being able to hurt myself in the most hilarious ways.

The moral of this story is don’t get hung up on the silly or embarrassing things. There is always a brighter side to the story. I bust my tail in front of a building full of people, hurt myself pretty bad and still laugh about it. Try to forget the humiliating parts and take joy in the small things. Enjoy the EveryDay Successes.

Why I’ve Been Away

I know that I haven’t posted in a while and I have been questions as to why I haven’t. I want to address these questions and also discuss the reason that zebras sometimes take a leave of absence from life. I guess you can say this is a two part blog post. Continue reading

How Often Do You Dislocate?

I would like you to take a second and imagine you have never heard about EDS or hyper-mobility syndrome. Imagine meeting a zebra and hearing all about Ehlers-Danlos Syndrome for the first time. Now for some of you this may not be hard because you recently heard about it but for those of us with it, it has become like second nature for us. Just imagine someone casually mentioning that they dislocate. They literally fall apart like Mr. Potato head. Oh, I have A LOT of questions for this person.

When I tell someone about EDS, the most common questions I get are, “How often do you dislocate?” and “Have you dislocated while you were with me?”. I love when people ask questions. It makes me feel like I am doing something good to share what I and others are facing. So, please ask away. But to answer your questions, I don’t dislocate on a schedule. I can not tell you in the morning how many times I will dislocate that day. I have learned to assess the damage and guesstimate the number of dislocations I can expect but I can never tell. On a good day, I will dislocate my knee around 2 or 3 times. I know what you are thinking, “THAT IS A GOOD DAY?”. Many of you may say that because it is such a low number compared to your dislocation count and the other part of you guys reading is thinking, “this girl actually losses control of a body part and it dislocates DAILY!”. These are my good days and I take them as there are. I am thrilled to only have 2-3 dislocations in a day but my bad days happen to. Bad days come in one of three fashions. There are bad dislocation count days, there are body part dislocation days, and then there are those days that are both. Those are similar yet very different. I’ll explain them briefly.

Bad dislocation count days: These are days where one body part dislocates many times. The pain is mostly centralized to one body part. The one part will dislocate more than a few times and continue to grow the pain levels.

Body part dislocation days: These days are defined by the number of body parts that dislocate in that given day. The pain is dispersed throughout the body and radiates from each piece that has dislocated.

As you can see, it is very hard to answer the question of how often I actually dislocate. I guess it all depends on the day and which piece we are talking about. But to give you a number, I’ll guesstimate. On an average good day, about 2 to 3 and on a bad day upwards to 10 or more. I know large numbers are scary, especially when they are two digits but honestly, I have it easy. There are many people out there with worse and I am doing just fine. I am enjoying myself and celebrating my EveryDay Successes.

 

Tell me what your good and bad days are in the comments. 🙂

 

“Walk it Off”

Everyone has those family quotes and inside jokes. Well in my family we say, “Walk it off.” I can not count the amount of times I have heard this. Whether it was being screamed at me from the side lines of a soccer field, or when I stubbed my toe at the house, this could always be heard. It originated when
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A Butterfly on my Knee.

On my Instagram page (eds.everydaysuccesses) I posted a picture of the butterfly tattoo I just got a couple of days ago. I promised an explanation about the butterfly and ensured you that it had to do with Ehlers-Danlos Syndrome and my journey. So if you are interested here it goes… Continue reading