When you hear about EDS for the first time it is only natural to have questions. (I know I would have some.) One of my favorite questions to answer is, “What helps keep you sane?” The answer is simple: Connections.
Connections or people in your corner is the difference in a happy life and a miserable one. I personally have met people in person and online that have helped change my whole perception of the situation I was dealt. Those who are willing to listen and learn about the struggles I have and the good that comes from EDS are the ones I like to keep around. I have some great people in my corner rooting for me. Finding your cheerleaders can be the turning point in your diagnosis and survival. Now, this can also mean you have to make cuts to your team. I have also had to cut people from my “squad”. These people were cut for reasons such as unwillingness to understand or listen to my situation. Do I miss them? Sure. Am I better off? Probably. Cutting those who do not understand and do not seem to put in effort to try can be the hardest thing to do, but ultimately you will be happier and healthier. Spending your time and energy (which you have little of anyway) on someone who isn’t willing to give you a chance is not only physically damaging but mentally and emotionally scaring.
When choosing your team, make sure to pick those who are in it for the long haul and willing to help you along the way.