What Is the Most Misunderstood Aspect of EDS… Revised

I have a crazy schedule most of the time due to going to school and teaching. It is hard to keep up with things some times. You can relate, right? To deal with this I typically write these articles in advance and schedule them to go up on Tuesday’s and Friday’s, with the exceptions of the daily update posts. When they post, I go back and reread them (for the 10th time) and this time, I read it and was not happy with the post. I think that this is something that needs to be addressed. I wrote that the most misunderstood aspect of EDS is that it is invisible. I, (since writing) have come to find that this is not the most misunderstood aspect. I have learned in the week since writing the post that the hardest part for people to understand is that just because we have this, it doesn’t make us incapable of anything. I understand that EDS is really hard to wrap your head around especially when you first hear about it. I can not imagine hearing about it for the first time ever and not experiencing it. I can not imagine how hard it would be to get that someone literally falls apart each day. This being said, I think that it is important to discuss what is hard for most to understand. I am not useless, incapable, pathetic, sad, fragile, delicate, feeble, weak or otherwise unable. Yes, I fall apart but I go right back together. In my mind, I am able to do so much more than others. I mean, I am pretty much a super hero. I dislocate and continue on with no problems. Some people stub a toe and feel like they can not walk for a week. I am capable of so much and I intend to live up to my potential. Pain, dislocations and subluxations and all will not stop me. I think that the most misunderstood aspect of EDS is that I am weak. I am anything but weak. I am a fighter. I am a survivor. I am a warrior. I am strong. I am strong willed. I am (very) stubborn. I am a zebra, but I am not weak.

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