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Day 1: Introduce Yourself and What Type of EDS you have. 

If you saw my last post, then you already know I am going to start a 30 day EDS blogging challenge. Well here goes nothing… Today is day one.

Day 1: Introduce Yourself and What Type of EDS you have.

My name is Tori and I am 22 years old. I live in North Carolina and am currently going to school to become a Special Education teacher. Blogging isn’t something I usually do, or even considered doing but somehow I am here. I chose to share my story because I am a Ehlers-Danlos Syndrome survivor. I use the word survivor because I don’t like to think I am suffering from anything. I live with EDS hypermobility Type each and every second of my life but I am doing okay. Hypermobility means that I dislocate. I know it sounds gross, but it’s my normal. I like to think of it as a superpower. Doesn’t sound so super, but it is. My pain tolerance is incredible. Remember those signs in doctors offices that have a pain scale from 1-10 and the emojis that show happy to sad? Well your 10 is my (and other EDS survivors) 20. Pretty intense but it means we are strong enough to handle it. With EDS some days are good, some bad and some really bad. Everyday activities that most people wouldn’t ever consider as a challenge, can be gruesome. It’s a weird world I live in. I mean imagine a set of stairs. You probably think, “gosh, isn’t there an elevator?” but take them anyway or you may tackle the whole set without even noticing there were stairs there. Not me. I think about steps before I even leave my house. If friends of mine want to go somewhere and ask if I want to join, I contemplate the amount of walking, inclines, stairs, time spent standing, time spent sitting, what I have to do for the rest of the day, what I have to do tomorrow, and if all of these added together are worth the risk of an hour with a friend. It seems like a giant math problem, right? Good thing I like math. It’s a weird life but I am enjoying it.

30 days of EDS blogging challenge.

It’s pretty obvious I am new to blogging. I am still trying to get used to the idea that what I write will be out there for the world to see and the idea that someone is actually reading it. To help with the beginning blog jitters, I am going to participate in a 30 day EDS blog challenge. What’s that? Well it is going to be 1 blog post a day about me and how EDS has made a difference in my life and who I am. Throughout the next 30 days, I am going to try and open up about the hardest and most enlightening parts of my life. So, bare with me, it’s all about my crazy fun world. I encourage comments but remember what your momma told you, “if you have nothing nice to say, say nothing at all”.